Short CV/Education and training

  • 1995
    Wageningen UR (University & Research), Food Technology, specialisation: Toxicology

  • MSc cum laude

  • Extra curricular certificates: Laboratory Animal Science, Radiation protection

Selected publications

  • Rauh SP, Heymans MW, van der Maaden T, Mehr DR, Kruse RL, de Vet HCW, van der Steen JT. Predicting mortality in nursing home residents with dementia and pneumonia treated with antibiotics: Validation of a prediction model in a more recent population. J Gerontol A Biol Sci Med Sci 2018, November 12 epublished

  • van der Steen JT, Smaling HJ, van der Wouden JC, Bruinsma MS, Scholten RJ, Vink AC. Music-based therapeutic interventions for people with dementia. Cochrane Database Syst Rev. 2018 Jul 23;7:CD003477

  • van der Steen JT, van den Bogert CA, van Soest-Poortvliet MC, Fazeli Farsani S, Otten RHJ, ter Riet G, Bouter LM. Determinants of selective reporting: a taxonomy based on a content analysis of a random selection of the literature. PLOS ONE 2018 February 5;13(2):e0188247.

  • Boogaard JA, de Vet HCW, van Soest-Poortvliet MC, Anema JR, Achterberg WP, van der Steen JT. Effects of two feedback interventions on end-of-life outcomes in nursing home residents with dementia: a cluster-randomized controlled three-armed trial. Palliat Med 2018;32(3):693-702.

  • Lemos Dekker N, Gysels M, van der Steen JT. Professional caregivers’ experiences with the Liverpool Care Pathway in dementia: an ethnographic study in a Dutch nursing home. Palliat Support Care 2018;16(4):479-486.

  • van der Steen JT, Lemos Dekker N, Gijsberts MJH-E, Vermeulen LH, Mahler MM, The BA-M. Palliative care for people with dementia in the terminal phase: qualitative studies to inform service development. BMC Palliative Care 2017;16:28.

  • van der Maaden T, de Vet HC, Achterberg WP, Boersma F, Schols JM, Mehr DR, Galindo-Garre F, Hertogh CM, Koopmans RT, van der Steen JT. Improving comfort in people with dementia and pneumonia: a cluster randomized trial. BMC Med 2016;14(1):116.

  • Brazil K, Galway K, Carter G, van der Steen JT. Providing optimal palliative care for persons living with dementia: A comparison of physician perceptions in the Netherlands and the United Kingdom. J Palliat Med 2017;20(5):473-477.

  • van der Steen JT, Goodman C. What research we no longer need in neurodegenerative disease at the end of life: the case of research in dementia. Palliat Med 2015;29:189-192.

  • van der Steen JT, Radbruch L, Hertogh CMPM, de Boer ME, Hughes JC, Larkin P, Francke AL, Jünger S, Gove D, Firth P, Koopmans RTCM, Volicer L; on behalf of the European Association for Palliative Care (EAPC). White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliat Med 2014;28(3):197-209. Top 1% cited in area.

  • van der Steen JT, Hertogh CMPM, de Graas T, Nakanishi M, Toscani F, Arcand M. Translation and cross-cultural adaptation of a family booklet on comfort care in dementia: Sensitive topics revised before implementation. J Med Ethics 2013;39(2):104-109.

Complete list of publications

Selected projects

  • Please contact me at to discuss current and new projects.

Membership in scientific bodies/juries

  • An editor of Palliative Medicine. The scientific journal of EAPC, Sage. Highest impact factor of palliative care journals (IF 4.2)

  • Member of the Scientific Advisory Board for the UK National Institute of Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care (CLAHR) of East England, UK

  • Member of the international Advisory Group for Namaste Care trials (UK-led, US, Canada, The Netherlands)

  • Member of EPYLOGE International Advisory Board on German project on palliative care in young-onset and late-onset dementia

  • Member of the Advisory Board of ParkinsonSupport to improve palliative care in Parkinson, ParkinsonNet, Nijmegen , The Netherlands

  • Member of the Advisory Board of Makara Journal of Health Research, Universitas Indonesia

Media coverage

  • Recent: Developing Palliative Care Services for People With Chronic-Progressive Diseases at the End of Life. This is the title from our symposium with contributions from Norway, Israel, UK and The Netherlands which has been selected from the several hundred symposia submitted for the IAGG/GSA combined World Congress, San Francisco, USA, July 23-27, 2017, elected as a Presidential Symposium.

Soft Skills/Other activities and achievements

Other activities and achievements/family

  • Care for children and sibling, previously sole caregiver for both parents, certified first aid, leisure: horse riding, swimming, gardening, travel


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