Short CV/Education and training

Academic education and degrees

  • 1980 – 1986
    Maurick College Vught: Atheneum

  • 1986 – 1989
    Hogeschool ’s-Hertogenbosch: Economy (Bachelor)

  • 1989 – 1991
    Erasmus University Rotterdam: Economy

  • 1991 – 1996
    Utrecht University: Clinical and Health Psychology (MA)

  • 1998 – 2001
    Netherlands institute for health sciences (Nihes): Epidemiology (MSc)

  • 1998 – 2003
    Erasmus University Rotterdam (PhD)

Academic appointments

  • 1996 – 1997
    Junior researcher. Netherlands Institute of Primary Health Care (NIVEL)

  • 1998 – 2002
    PhD student. Erasmus MC, department of Neurology / department of Medical Psychology and Psychotherapy

  • 2002 – 2006
    PostDoc Researcher (1.0 fte). Erasmus MC, department of Public Health

  • 2007 – 2008
    Assistant Professor (1.0 fte). Erasmus MC, department of Public Health

  • 2009 – 2011
    Associate Professor (1.0 fte). Erasmus MC, department of Epidemiology

  • 2011 – 2012
    Professor (1.0 fte). Erasmus MC, dept of Epidemiology, Rotterdam, NL

  • Since 2012
    Professor (1.0 fte). Emory University, Atlanta, USA

Selected publications

  • D Buljevac, WCJ Hop, W Reedeker, ACJW Janssens, FGA van der Meché, PA van Doorn, RQ Hintzen. Stressful life events and exacerbations of multiple sclerosis. BMJ 2003;327:646-50.

  • ACJW Janssens, JB de Boer, PA van Doorn, HM van der Ploeg, FGA van der Meché, J Passchier, RQ Hintzen. Expectations of wheelchair-dependency in recently diagnosed patients with multiple sclerosis and their partners. Eur J Neurol 2003;10:287-93.

  • ACJW Janssens, PA van Doorn, JB de Boer, NF Kalkers, FGA van der Meché, J Passchier, RQ Hintzen. Anxiety and depression influence the relation between disability status and quality of life in multiple sclerosis. Mult Scler 2003;9:397-403.

  • ACJW Janssens, PA van Doorn, JB de Boer, FGA van der Meché, J Passchier, RQ Hintzen. Impact of recently diagnosed multiple sclerosis on quality of life, anxiety, depression and distress of patients and partners. Acta Neurol Scand 2003;108:389-95.

  • HR Boeije, ACJW Janssens. ‘It might happen or not’: how patients with multiple sclerosis explain their perception of prognostic risk. Soc Sci Med 2004;59:861-8.

  • ACJW Janssens, RQ Hintzen. Adaptation is favorable for most patients with multiple sclerosis. Arch Neurol 2004;61:1807.

  • ACJW Janssens. Divorce and unemployment in multiple sclerosis: recalculation of the data of Morales-Gonzales JM, Benito-Leon J, Rivera-Navarro J and Mitchell AJ. Mult Scler 2004;10:716.

  • ACJW Janssens, MC Pardo, EW Steyerberg, CM van Duijn. Revisiting the clinical validity of multiplex genetic testing in complex diseases. Am J Hum Genet 2004;74:585-8.

  • ACJW Janssens, W Reedeker, JB de Boer, NF Kalkers, J Passchier, PA van Doorn, RQ Hintzen. Patients with multiple sclerosis prefer early diagnosis. Eur J Neurol 2004;11:335-7.

  • ACJW Janssens, PA van Doorn, JB de Boer, FGA van der Meché, J Passchier, RQ Hintzen. Perception of prognostic risk in patients with multiple sclerosis: the relationship with anxiety, depression and disease-related distress. J Clin Epidemiol 2004;57:180-6.

Complete list of publications

Selected projects

  • My research concerns the translation of genomics research to applications in clinical and public health practice. My work focuses on the prediction of multifactorial diseases (e.g. diabetes, cardiovascular disease, asthma) using genetic risk models and on the assessment of the clinical validity and utility of genetic testing. This includes (1) methodological studies on selecting the most appropriate evaluation measures for different phases of translational research, (2) modeling studies that investigate the role of various aspects of genes and disorders (e,g., genotype frequency, heritability, disease prevalence) on the predictive ability of genetic risk models, and (3) empirical genetic epidemiological studies on the cumulative association of multiple genetic markers, including several association studies on metabolic, neurological and psychiatric diseases. I am also interested and working on psychological and societal aspects of genetic testing, which is relevant for the implementation of genetic tests in the future, and on research methodology and research ethics.

Membership in scientific bodies/juries

  • Nederlandse Vereniging voor Humane Genetica (NVHG; 2010-now)

  • American Society of Human Genetics (ASHG; 2007-now)

  • European Society of Human Genetics (ESHG; 2005-now)

  • Dutch Association of Community Genetics and Public Health Genomics (NACGG; 2005-now)

  • Vereniging voor Epidemiologie (VvE; 2002-2013)

  • European Health Psychology Society (EHPS; 2000-2006)

  • Society for Medical Decision Making (SMDM; 2000-2005)

  • Chair Dutch Association of Community Genetics and Public Health Genomics (NACGG; 2008-2012)

  • Board member Dutch Society for Human Genetics (NVHG; 2010-2012)

Memberships of scientific committees

  • Member National Institutes of Health (NIH) translational research review panel for ‘Translation of Common Disease Genetics into Clinical Applications’ (R21; 2009)

  • Member National Institutes of Health (NIH) translational research review panel for ‘Implementation Planning Grants for Educational, Behavioral, or Social Studies for Translation of Genetic Factors in Common Diseases’ (U34; 2009)

  • Member Ethical Legal Social Issues committee of the International Genetic Epidemiology Society (IGES; 2008-2010)

  • Chair Short Courses committee European Health Psychology Society Conference (2006)

Editorships or memberships of editorial boards

  • Genome Medicine (2013-now)

  • PLoS Currents: Evidence of genomic tests (2010-now)

  • Journal of Community Genetics (2010-now)

  • Epidemiology, Biostatistics and Public Health (formerly Italian Journal of Public Health; 2009-now)

  • Public Health Genomics (2008-2011)

  • PLoS One (2007-2010)

  • Medical Decision Making (2006-2009)

Media coverage


  • Catalyst, 7 June 2012 (ABC Australia): ‘Decoding the Risks’.

  • Eenvandaag, 2 March 2011: ‘Genetisch onderzoek voor iedereen: opkomst huis-tuin-en-keukengenetica’.

  • TV Rijnmond, 27 July 2009 about direct-to-consumer genetic testing.

  • Tros Radar, 2 March 2009 about direct-to-consumer genetic testing.

  • Teleac, 25 May 2008: Interviewed in documentary ‘the Dodo Game’.


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